FAQ

 

What is debra of America?
The Dystrophic Epidermolysis Bullosa Research Association of America (debra), was founded over 30 years ago in New York City and is the only national nonprofit organization dedicated to funding research and providing supportive services and programs for those with Epidermolysis Bullosa (EB) — The Worst Disease You've Never Heard Of.™ Some of the programs and services we provide are; wound care supplies shipped directly to patients, an EB Nurse Educator, education, new family packages, and money for research towards finding a cure for EB. There is currently no cure, and the research is on-going. Treatment is supportive and includes daily wound care, bandaging, and pain management. For more information, visit debra.org


What is EB?
Epidermolysis Bullosa (EB) is a rare genetic skin disorder that causes the skin to be so fragile that the slightest friction can cause severe blistering - inside and outside the body. It is present in 1 out of every 20,000 live births in the US. It can occur in every racial and ethnic group, and affects both sexes equally. There is currently no cure, and the research is on-going. Severe forms of EB cause patients to live with constant pain and scarring. The worst forms of EB lead to eventual disfigurement, disability and often early death. There are many patients who are diagnosed with milder forms, which, while they can be extremely difficult to live with, are non-disfiguring and non-lethal. Click here to learn more.


How do I create something for DebRA’s Artists’ Corner?
Artists interested in making something to sell in our DebRA Shop may email staff@debra.org


How long will it take for my order to arrive?
Standard shipping for orders in the contiguous United States takes 5-10 business days. Unfortunately, we cannot ship internationally. Please contact us at (212) 868-1573 if you need to upgrade your shipping to an express option.


What shipping method do you use?
Orders are shipped via UPS or USPS First Class.


Do you ship internationally?
Unfortunately, we cannot ship internationally.


What forms of payment do you accept?
We gladly accept major credit cards (Visa, MasterCard, American Express, Discover) or direct payments, via PayPal.  For further questions regarding payment, please call (212) 868-1573


How secure is the DebRA Shop?
Our Shop uses PayPal for payments, and PayPal automatically encrypts your confidential information in transit from your computer to ours using the Secure Sockets Layer protocol (SSL) with an encryption key length of 128-bits (the highest level commercially available).


What is your return policy?
Our goal is 100% customer satisfaction.  If a product is defective, it may be exchanged for a new product which will be shipped to you at no additional charge.


Still have questions?
For additional information, please use the contact form or email staff@debra.org.



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